Rural diverse populations are exposed to many stressors such as low geographic mobility, rejection, and discrimination that can detrimentally affect their access to care and overall well-being. This presentation will synthesize community based participatory (CBPR) studies for developing interventions in promoting well-being with and for rural populations. More specifically, we will describe the potential of developing collaborative partnerships with rural community key stakeholders to participate in all aspects of research with and for rural underrepresented populations. We will discuss CBPR principles such as: 1) know the community, 2) build trust, 3) partner with the community, 4) respect community cultural knowledge, (5) be flexible and release control to the community, and (6) make long-term commitments. This presentation will include examples of research performed in rural immigrant populations and with families of children with autism who live in remote, underserved areas. We will also discuss the potential benefits and risks of students� involvement in CBPR studies. Lastly, the presenters will engage with the audience to brainstorm strategies for involving other diverse communities in research.
Session type: Workshop
Learning Objectives:
- The attendee will be able to understand the Community-Based Participatory Research principles
- The attendee will be able to reflect the significance of trust when doing community-based researh
Speakers & Panelists
Jeanne-Marie Stacciarini
Dr. Stacciarini is an associate professor; Assistant Dean for Diversity, Inclusion and Global affairs at the College of Nursing, UF. Her research focuses on CBPR to address social determinants of mental health in underserved and minority populations. Dr. Stacciarini has collaborated with faculty from the U.S., Mexico and Brazil on studies to understand gender, race and health disparities. She has published/presented research in English, Portuguese, and Spanish to promote global scholarly advancement in nursing. Dr. Stacciarini has received several awards for raising cultural awareness in teaching, advocating for diversity, inclusion and for developing research with hard-to-reach populations. Dr. Stacciarini is a Fellow of the American Academy of Nursing.
Jennifer H. Elder
Dr. Jennifer Elder is Professor and Director of the PhD Program at the UF�s College of Nursing. Dr. Elder has spent 35 years studying autism and related child neuropsychiatric disorders, methods of engaging families, and reducing caregiver stress. Dr. Elder has been primary investigator on four NIH/NINR grants and Co-Investigator on three others. Most recently she has been directing a project funded by the Patient Centered Outcomes Research Initiative (PCORI). She has given numerous international research presentations and been the recipient of three UF Research Professorship Awards. She is a fellow in the American Academy of Nursing and Distinguished Alumna at Georgia Regents University.